| MS & Health related Links | Description |
| N Ireland MS Society
|
New site is up & running |
| Mid-Ulster Branch
|
Check out Mid-Ulster's webpage |
| Newry & Mourne Branch |
Newry & Mourne Branch are also online now |
| Cookstown MS site | Cookstown Help & Support Group are now online. Added 06/04/2006 |
| UK MS Society
| Prize winning site with information,
research etc. & links to branches in GB |
| New UK MS Society site for young & newly diagnosed | This new website, launched 23/01/2006, is aimed at young people newly diagnosed with MS. It aims to provide information about living with MS, highlight sources of information and support, and send out the message that life doesn't stop when MS starts. It is hoped it will go some way to helping young people understand the impact this unpredictable and challenging disease might have on their lives. Link added: (31/01/2006) |
|
Irish MS Society |
Irish research,
perspective, information & personal profiles
of people living with MS. |
| US National MS Society |
Another excellent
site including on-line access to a video of
a major conference in October 2000 which focussed on three main
areas - drug treatments/ remylination / environmental triggers.
The transcript can also be downloaded and read separately |
| Federation of MS Societies |
International
Federation of MS Societies - well worth a visit! Includes
free online access to bi-annually updated book assessing effectiveness
of huge range of treatments - also provides access to huge section
on research and advice and discussion on managing symptoms. |
| Accelerated Cure Project
|
Also known as Boston Cure Project, this non-profit company is dedicated to
curing MS by determining its causes. Founded by Art Mellor when diagnosed with MS & his neurologist, Dr Vartanian in 2001, it is now a national company pursuing it's goals in accordance with it's "Cure Map". Link added: 08/02/2006)
|
| PatientsLikeMe |
PatientsLikeMe is a unique treatment and outcome sharing community for people with life-changing diseases. It was launched in 2006 for ALS (Lou Gehrig's disease) patients and has recently expanded to include Multiple Sclerosis and Parkinson's disease. You can search for a particular treatment or symptom to find out the experience of over 2,300 patients. You can also join (it's free) and add your own treatments and symptoms to the database. Many of the contributors give permission for their individual details to be made public and these can be accessed on the site.Link added: 13/09/2007) |
| Canadian MS Society |
Contains large
databank of information & research. Includes page of personal
profiles. |
| Australian MS Society |
Australian research,
perspective & information |
This is MS | An independent research news & community site without company grants, medical center affiliations, or advertisements, privately funded by individuals interested in fighting MS. Link added 06/04/2005 |
| All About Multiple Sclerosis |
UK based informative
& interesting site created and maintained by people with
MS for people affected by MS. Includes MS news, MS information,
personal experiences and contributions by people with MS |
| Multiple Sclerosis Resource
Centre | The MSRC is a UK charity committed to supporting anyone affected by MS
through access to unbiased information and advice. Their approach is to encourage individuals
to make choices that are appropriate to their daily lives. (Posted: 25/06/2008)
|
| UK MS Society Tissue Bank | The background,
aims & details of the tissue bank. Potential donors invited
to register for a donor card. |
| BMJ Best Treatments Site | An impressive new website from the British Medical Journal that rates thousands of health and medical treatments, based on clinical evidence of how well they work. Link added 24/05/2006) |
| Belfast Centre for Independent Living |
Promotes principles of independent living and advises on using Direct Payments.
|
| Help
with Decisions on Disease Modifying Drugs |
A new site provides factual information to help
people make decisions that are best for them. It describes the mechanism of MS with diagrams and the various treatments in clear language. It includes video of the process of self-administered injection treatments . Established by consortium including UK MS Society. |
| Motability |
Excellent official
site with information on schemes for wheelchairs, vehicles, adaptations
and lists of suppliers, prices etc. |
| Research & Information |
Vast databank
of research & information on MS |
| Personal MS Websites |
Site hosts links
to personal websites of people with MS - mainly Canadian or US |
| Medlineplus |
First class health
information site provided by the US National Library of Medicine |
| Ulster Cancer | The Ulster Cancer Foundation site |
| NHS |
Nationa Health Service site. |
| UK Health Information |
Government sponsored site with general health information. |
| Department of Social Security |
Official government
site with information on the range of state benefits for pensioners,
disabled, carers. workers, young etc. |
|
Government public services site |
An excellent Government portal site with access to an amazing amount of information on all public services Recent addition (01/11/2005) |
| Alzheimer's Organisation | A UK organisation that supports persons with Alzheinmer's & dementia disease, their families & carers |
| Carers National Association Northern Ireland |
Contains information
on carers' benefits, campaigns, advice pamphlets, links to other
related sites etc. It welcomes contact from any person or organisation
involved in caring |
| Local Community Links | Description |
| Citizens' Advice Bureau | Derry Citizens' Advice Bureau website
|
| Samaritans
| Samaritans' Derry Branch - contact information |
| LSP Community Directory
| An electronic version of the Local Strategy Partnership Community Directory is available to download in PDF format. It can then be searched for details of local organisations. |
| WELB
|
Western Education & Library Board Site |
| NI Libraries site |
Stock can be searched for titles & loans can be renewed at the site with pin number |
| Millennium Forum | Millenium Forum site |
| Waterside Theatre | Waterside Theatre site |
| Derry Journal | Derry Journal can be accessed online |
|
Mencap |
A UK organisation with a local office that supports children and adults with a learning
disability, their families and carers. |
| WEA |
The Workers' Educational Association is an independent organisation with a local office that provides community based education across Northern Ireland. |
| U3A Foyle | A local voluntary organisation that
provides educational courses, recreational activities and social
events for people at least 50 years old. |
| Trust Caring & Nursing Agency
|
Local private agency providing caring & nursing services. Link added 27/02/2006
|